If you live in the United States, you probably just finished a few days worth of visiting with family & friends and filling up with yummy food. I hope you had a wonderful time! This time of year, as we close in on the holidays, it is common to find yourself thinking about what you are grateful for in your life. 2017 was full of changes and realizations for me. I wouldn’t change any of it, but what am I most grateful for?
More accurately, I’m so glad I was able to find the nerve to start blogging. Writing for my blog encouraged me to learn about blogging, different forms of social media, marketing a blog, video, and much more. It also drove me to look further into the types of self acceptance I want for myself. I’ve spent a lot of time this year examining who I am, why I do things, and how my thinking helps or hurts me. Although I haven’t written anything over the past few months, I’ve still been on my Twitter and Instagram accounts, and I love the people I’ve found there.
So, my blog as brought me knowledge, growth, and community. What’s not to love?
I’m very grateful to have doctors who listen to me and work to improve my life quality. While I still have daily pain, need to work around my dysautonomia, and deal with my anxiety and depression, it is so much better than it was last year. So many people have doctors who won’t listen to them and/or are satisfied with providing a low-level of care. My doctors have worked to find answers for me, and strive to be sure I am getting the care I need to have a good quality of life, not just the bare minimum to get by.
My husband of over 20 years is incredibly supportive. Anytime I have an interest I’d like to explore or expand on, he backs me. His support of me and this blog has been amazing. I can think of a few times I may have quit if it wasn’t for him. He believes in me more than I do half of the time, although I’m working on that.
In addition, the patience, understanding, and willingness to learn about my chronic illnesses that he shows is so appreciated. Dealing with this stuff can be really hard, and a supportive partner makes all the difference. He listens to me on my bad days, and we try to take full advantage of my good days. I’m really glad I have him with me on this journey.
As we head into the holiday season, I hope to get a lot more writing done. My goal is to post more often, but try to keep them short for now. Be sure to subscribe to stay updated!
It would be easy to think there is only loss when it comes to chronic illness. At first the losses are all you can focus on actually, but after some time it becomes possible to see what you have gained. I wanted to share my list of things I’ve learned from having a chronic illness.
When it comes to chronic illness, you don’t get to do much choosing. You don’t choose your illness. Your illness chooses your symptoms and severity. Many times you don’t even get to choose your doctor or treatment, your insurance (or lack of) does.
There usually isn’t anything you can do about this lack of choice. In such a case, the best thing you can do is acknowledge there is no choice and accept your situation.
I can’t change the fact I have fibromyalgia and my other illnesses. In accepting that, it relieves stress and helps me through the grieving for my old life. Accepting my old life is gone leaves me able to make new plans and not dwelling on what I can’t do.
Even bigger, I’ve found self-acceptance since becoming chronically ill. I’d like to think I still would have if I hadn’t become sick, but I’m not so sure. I’m pretty sure I would have kept being viciously critical of myself for not measuring up to ridiculous arbitrary standards. High standards are great, but you need to be able to love yourself where you are also. I think this is a lesson I only could have learned from having a chronic illness.
How to slow down
First, painful joints and muscles, and later the effects of my dysautonomia, made me slow down. My whole adult life I’ve walked one speed, and it wasn’t a stroll. This is indicative of how I’ve functioned in general. If I’m going to be doing something, I want to get to it and get it done. Now I have to make a concentrated effort to pace myself and go slowly. I’m not a dawdler, so this has been a hard lesson.
Having to take multiple breaks and plan less in a day was also not something I wanted to do, but it was a lesson I learned from having a chronic illness. Not listening to my body, not slowing down, meant an increase in symptoms and missing out on doing even more than if I had just adjusted my plans to begin with. So, I’ve accepted this lesson too and made myself slow down. A side benefit I greatly appreciate is the fact that I injure myself much less often now.
All that slowing down made me work on my patience too. No longer can I just push through and hurry up. I must take my time.
It took months to learn to be patient with myself. I’ve never been very good at it, and there was so much irritation with not being able to do my usual routine. Many tears were shed in anger and frustration, but I finally found the self-compassion and understanding I needed to be patient.
Another way patience has become important is that I’ve needed to give more chores over to my kids rather than do it all myself. Anyone who deals with children knows that is its own unique drain on your level of patience. I can’t just decide to take over and get it done my way. Careful instruction and calm correction is needed to teach them what needs to be done. Deep breathing comes in handy.
For 16 years I was the type of mother likely to put my kids before myself. It is not healthy to always do this. You deserve to be taken care of just like anyone else. While I had people telling me this, guilt always got in the way of any self-care I might try to practice. After I got sick, I had to learn to prioritize my self-care.
Now I make sure being a mother does not come before caring for my health. My kids come first as often as possible, but when I have a need that has to become a priority, I make sure it happens. Children are able to be wonderfully understanding, and it’s a good lesson for them too. For one, they are learning compassion, empathy, and how to care about someone. Also, I am teaching my kids that self-care is very important, and they should not short change themselves. Loving someone does not mean you need to sacrifice yourself.
Other things I’ve learned from having a chronic illness
These aren’t life lessons, but they are things I really don’t think I would have learned otherwise. Being sick, having to slow down, and finding more patience gave me the time and ability to learn loom knitting, crochet, journaling, and blogging, and that’s just so far. I’m sure I will keep learning things, because:
There is so much going on in the world and I don’t want to be left behind.
Learning new things just flat makes life more interesting.
I love taking a good look at my life and seeing where things are overall. Being able to see that I have gained so much, even as chronic illness has taken other things from me, is huge, and I’m glad I get to share that with you all here.
How about you? Are you able to see that you gained something positive from a negative event in your life? Please share in the comments below, or feel free to email me.
I’ve decided to start a monthly series here on Flawed, Messy Life. It’s called Confessions of a Chronically Ill Blogger, and I’ll share some of the challenges I face and how I deal with them. I’d like the share my journey of making my dream come true with all of you.
I’ve mentioned before that I have fibromyalgia, inflammatory arthritis, dysautonomia, depression and anxiety (generalized and social). Today I want to discuss how these affect me as a blogger. Since they have many overlapping symptoms that are the main issues, I decided to cover it by symptom rather than by condition.
This is my most common problem. Even when everything else is behaving, brain fog is a frequent issue. Brain fog is a symptom of quite a few different conditions, and it goes along with all of mine. It really is foggy thinking or mental cloudiness as these pictures describe.
You need ideas and words put together somewhat intelligently to compose a blog post. That isn’t an easy task with brain fog. Finding the right word for common objects is a challenge some days. I’ve lost the word for potholder, tea, cup, notebook, and many other simple objects before. I will again. Now imagine trying to get more complex ideas out of your head and onto paper. It just isn’t going to happen some days.
This is a huge hurdle when writing a blog. Of course I would rather be prepared for the times my brain fog drags out for days. To do so, I do as much writing as I can on my good days. I might manage to get 2-3 weeks of posts done in one week. This can help so I either don’t miss posting, or only miss one day if things get pretty bad. I also keep ideas ready that take minimal planning and brain power. Thankfully, I have awesome readers who understand when those tricks aren’t quite enough.
This is the next largest problem. Being able to think clear isn’t much good if you can’t stay awake. Fatigue is not the same as being tired. It is feeling like you are moving through cement. When you suffer from fatigue, you feel weighed down, like gravity is higher in your vicinity.
Fatigue means I will suddenly not be able to stay awake. I have no choice in the matter. A nap will happen.
I’ll still manage some writing if this is my only problem. It might not be something new, but I can type up a draft already written up in my notebook, or I’ll proofread and add on to a first draft saved on the computer. I try to manage at least a little progress on these days.
While pain can bring on fatigue and brain fog, on its own pain is actually the easiest symptom for me to deal with. Brain fog and fatigue are all-consuming and demand your attention. Pain, I can distract myself from.
With some pain pills, music, or just writing a blog post I can many times find some tactics, or a combination of them, to distract myself and accomplish something. Again, the only works if the pain hasn’t worn me out already and caused the fatigue and brain fog to set in.
So, those are the three main obstacles I have as a chronically ill blogger. My posting schedule has to work around my brain fog, fatigue, and pain. It’s an extra challenge, but I feel it is worth it. My anxiety and depression are different animals, and I’ll address them in another post in this series.
Much love to you all and thank you for being a part of this.